Creating
a Long Term Vision
and Keeping the End in Mind
by Lorraine Grundy - Director
of Occupational Therapy
Astech Specialist Rehabilitation Services
'The Astech Approach' is
a system that teaches children how to access assistive technology
in order for them to use this technology in a functional way e.g.
to communicate and/or to control their environment.
For many children who have complex needs
(physical, sensory and cognitive impairments) it is often difficult
to imagine they could learn to use technology in this way.
Our extensive experience in working with
children with complex needs has proven that these are realistic
and attainable goals if you carry out the following:
- Identify a long term vision with
an appropriate long term goal.
- Identify the progression of skills
necessary to achieve this goal.
- Believe the child can attain these
skills.
- Make a commitment to teach the
skills necessary.
It is essential to understand that it may
take some time to achieve the long term goal, maybe several years,
but the benefit for the child and their family is immeasurable.
Vision and
Belief
The child’s achievements are only limited
by our vision and commitment. Children with complex needs are not
going to learn functional communication skills on their own as their
challenges are too great, so it is up to us to teach them. Everyone
involved needs to have an expectation that the child will gain these
skills.
Reaching the long term goal will take
some time and those who either live with the child and/or work with
them week after week, need to know the long term vision and goals
and what the benefits to the child are. If everyone understands
where it is the child is expected to go and sees that it is possible,
they will then have a better chance of believing that the goal is
attainable.
If you are having trouble envisaging what
the child could possibly achieve, I advise that you go and visit
children who have achieved skills through the use of technology
and talk to others who have taught children with severe and complex
needs. I have often taken a child and their family to meet other
children who have achieved functional outcomes in communication
or environmental control and they have found this to be very valuable.
Progression of Skills
You need to know what skills the child needs
to learn in order to reach their long term goal. There is no point
in teaching a child skills that do not lead to achieving this goal.
It takes so long to teach each individual skill, you do not want
to be teaching those that actually conflict with the ones needed.
An example of this is to teach a child
to activate the switch on a silence without any visual or auditory
cue. Where is this skill needed in a functional switch accessing
context?
It is essential to always keep the end in mind and a plan needs
to be developed of the skills necessary to learn and how they can
be taught. This plan can be changed and will evolve as the child
learns skills.
Commitment
Once the long term vision/goal is created
and all those involved believe that it is an attainable goal there
needs to be a long term commitment by all to achieve this outcome.
This commitment should be made by the funders of the services as
well as the family, educational and therapy teams. We need to ensure
that the implementation plan is kept fun and interesting for the
child and those working regularly with them. This plan should include
a mix of technology and non technology tools to teach the skills
required.
It is essential that there is a team of people working towards the
long term goal and that everyone applies the same strategies and
uses the same language etc . The team must include the family/carers,
teacher, teacher aide, occupational therapist, and speech-language
therapist. This is not just to gain a mix of knowledge and expertise
but to ensure that momentum is continued. If one team member leaves
there is someone else that can ensure the child continues to work
on the appropriate goals.
It is also very important that this plan
is carried out at home as well as school. Setting children up with
computer software and activities to use switch technology at home
can benefit in three ways:
- There is consistency between both environments
making it easier for the
child to understand how they can interact and control things around
them.
- It provides the child with the opportunity
for more practice especially
in the weekend and holidays.
- It can provide an opportunity for the
child to participate in an activity independently, a rare occurrence
for children with complex needs.
CASE
STUDY EXAMPLE
Here is an example of a child with complex needs, the long term
goal for him
and the progression of skills necessary to reach this goal.
The Child
Imagine a child with a severe physical disability (any age), with
no means of communication, very low vision, unknown cognitive abilities.
The child has definite preferences, really liking the Wiggles but
not the Teletubbies, likes milkshakes but hates juice. They have
no definite switch access skills and as yet, no consistent demonstration
of activating a switch to achieve a response.
Long Term Vision
To use an auditory scanning low tech or high tech communication
system to allow them to communicate what it is they are feeling
and want to do. They could also use auditory scanning to control
a scanning environmental control unit to control the TV or stereo.
Auditory Scanning
This is an example of auditory
scanning:
The child selects from a list of choices provided by auditory cues.
e.g. they could choose from feelings, things to do, food or drink.
For Example: - After the drink page is selected, the cue is spoken;
"Your choices are " milk, juice, water and milo."
"You choose - milk….., juice……, water……,
milo……… ."
There are a range of different ways the child could select their
choice:
- With a switch that is connected to an
assistive technology device or computer software that has auditory
scanning.
- With a switch that is connected to a recordable
communication device (Big Mack, chipper, step by step, etc) that
has ‘yes’ recorded on it. There is a low tech communication
system of symbols or words that the communication partner cues
the child through.
The child uses their voice to select ‘yes’
using the low tech communication system.
Our experience has shown that even if the child is going to use
their voice they need to learn the switch access skills mentioned
below because these skills teach them about choice making and
timing of interaction.
Skills Necessary
to Achieve This Goal
-
Understand that they have
the ability to control something whether
it be through a switch and/or with their voice.
-
Physical ability to access
the switch.
-
Understand that if they
press the switch something will happen.
-
To know when to press
the switch.
-
To know that there are
times you don't press the switch.
-
To develop preferences
for activities.
-
To know they have a choice.
-
To learn that to make
a choice ( i.e. to get the one you want ) you have to wait until
the oneyou want is either visually highlighted or is auditorally
cued
How to Teach These Skills
Frustrated with the available software and
the lack of an integrated teaching approach the Astech Team have
developed ‘The Astech Approach’ – a training system
that progressively teaches the skills needed to access computers
and assistive technology. 'The Astech Approach' has a number of
interactive software programs that can be used individually or as
a set for a total teaching system.
For the above child you would progress through
the following Astech Software:
- Press
- Press Wait
- Choice making within current Astech
Software
- Look for the release of new Astech
choice making software in late 2004.
This new product teaches children the skills needed
to use scanning setups.
In conclusion, the team at Astech believe
passionately that a shared vision and shooting for the stars can
unlock the hidden potential within the most disabled child.
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